Conference 2016

11th National Angelman Syndrome Association Australia Conference  -  "Finding Our Voice"

7th-8th October 2016

On 7th and 8th October 2016 more than 150 delegates gathered in Melbourne to hear from world leading experts about different aspects of Angelman syndrome, management strategies, and current research. The theme of “Finding Our Voice” was well addressed by both speakers and exhibitors. We were fortunate to have four Keynote Speakers over the course of the two days: Professor Bernard Dan (Belgium), Professor Chris Oliver (UK), Professor Ingrid Scheffer (Melbourne), and Mary-Louise Bertram (Perth). A range of issues were covered by these experts including genetic mechanisms, how our understanding of Angelman syndrome has changed over time, understanding behaviour and management strategies, sleep (or lack of), communication, AAC, literacy and epilepsy.

Our other invited speakers covered topics including Video Self Modelling, the Angelman Registry, how to support siblings, NDIS, Estate Planning, and Sensory Processing. It was a wonderful few days of education, and a great opportunity to learn from fellow Angelman syndrome families, seeing friends old and new. We hope our families have returned home better informed, supported, and with strategies that they can action to improve their children's lives. 

Some sessions were Video Recorded

Professor Bernard Dan is a Paediatric Neurologist from Belgium with long standing implications in various clinical practice and research relating to Angelman syndrome, as well as support and advocacy groups.

Anthea Naylor's presentation: Anthea is passionate about Video Peer Modelling and Video Self Modelling and it's benefits in engaging and transforming students, especially those with special needs who are usually visual learners.

Karen Bloomberg's presentation: Communication in the Community and AAC (Augmentative and Alternative Communication) Interaction Strategies for Intentional and Unintentional Communication.

Mary-Louise Bertram's is a qualified early childhood educator from Perth with special qualifications and training in the areas of communication AAC, sensory processing and literacy supports for children with complex disabilities.

PowerPoint Presentations

Chris Oliver is the Professor of Neuro-developmental Disorders at the University of Birmingham in the UK and director of the cerebra centre for neurodevelopmental disorders. Chris speaks about Understanding and Changing Behaviour in Children with Angelman syndrome: Walk a Mile in my shoes.

Charlene is working as an assistive technology specialist with Link Assistive or Link AT and has specialist skills and a passion for AAC (Augmentative and Alternative Communication) and Assistive Technology.

Professor Ingris  Scheffer's Presentation, who is a Paediatric Neurologist and professor at the Austin Health & Royal Children's Hospital University of Melbourne and Florey Institute of Neuroscience & Mental Health 

PowerPoint Presentation Only - No Sound
Peta Perrie: "Our Experience with the NDIS, How it has Positively Affected Mia and our Family and How to be NDIS Ready"

PowerPoint Presentation Only - No Sound
Ms Charmaine Bernie - Research Occupational Therapist: "Sensory Processing in Young People With Developmental & Social Communication Disorders"

PowerPoint Presentation Only - No Sound
Debby Conlon Presentation: Association for Children with a Disability - "Growing Together", 8th October 2016

First Point of Contact​

Contact your State Representative here

If for some reason you are unable to get through, contact our National President or National Vice President here

Visit the GiveNow Website

Our Mission

The ASAA was established to support, inform, educate, network, promote research and to advocate for families affected by Angelman syndrome - read more


© 2005 - 2018 Angelman Syndrome Association Australia. All Rights Reserved.

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PROUDLY COLLABORATING WITH FAST AUSTRALIA 

FAST Australia
The Foundation for Angelman Syndrome Therapeutics Australia (FAST Australia) is an organisation of families and professionals dedicated to funding research to provide treatments that will improve the symptoms of Angelman syndrome and ultimately that will provide a cure (see website).