Keynote Speakers

 

12th Angelman Syndrome Association Australia National Conference “From Strength to Strength”

Professor Bernard Dan

         

Bernard Dan is a Belgian paediatric neurologist and rehabilitation physician with in-depth knowledge of all aspects of clinical practice and research relating to Angelman syndrome, as well as with support and advocacy groups. He is currently the medical director of Inkendaal Rehabilitation Hospital in Belgium and professor of neuroscience at the Free University of Brussels (ULB). He is the Editor in Chief of Developmental Medicine and Child Neurology, the medical journal in which Dr Angelman made his first report of the syndrome back in 1965. 

 

Bernard authored the book "Angelman syndrome" (Mac Keith Press, 2008) which details his vast knowledge of this syndrome. This book provides a comprehensive review of clinical and genetic issues, natural history, possible pathophysiological pathways, specific clinical problems (motor impairment, behaviour, learning difficulties, communication, sleep, epilepsy), clinical neurophysiology, neuropathology, rehabilitation and basic research in Angelman syndrome. He is co-author of "Ethics in Child Health: Principles and Cases in Neurodisability" (Mac Keith Press, 2016) which explores scenarios faced by clinicians in neurodisability on a daily basis, and addresses lived experiences of children and families. This text demonstrates the understanding that Bernard Dan has for families affected by disability and the many emotional, practical and social issues they face.

 

Professor Bernard Dan has been the International Patron of Angelman Syndrome Association Australia since 2009. He has a longstanding relationship with many of our AS families. 

 

 

Professor Chris Oliver

 

Chris Oliver is Professor of Neurodevelopmental Disorders at the University of Birmingham in the UK and director of the Cerebra Centre for Neurodevelopmental Disorders. He trained as a clinical psychologist at Edinburgh University before completing a PhD on self-injurious behaviour in people with intellectual disability at the Institute of Psychiatry, London. He is currently researching early intervention, behaviour disorders in people with severe intellectual disability and autism spectrum disorder, behavioural phenotypes in genetic syndromes and neuropsychological and behavioural assessment for people with severe intellectual disability. He has published over 170 peer reviewed articles in scientific journals (including 25 on Angelman Syndrome), is Editor in Chief for the Journal of Intellectual Disability Research and serves on a number of scientific advisory committees for autism and syndrome support groups.

First Point of Contact​

Contact your State Representative here

If for some reason you are unable to get through, contact our National President or National Vice President here

Visit the GiveNow Website

Our Mission

The ASAA was established to support, inform, educate, network, promote research and to advocate for families affected by Angelman syndrome - read more


© 2005 - 2018 Angelman Syndrome Association Australia. All Rights Reserved.

PROUDLY COLLABORATING WITH FAST AUSTRALIA 

FAST Australia
The Foundation for Angelman Syndrome Therapeutics Australia (FAST Australia) is an organisation of families and professionals dedicated to funding research to provide treatments that will improve the symptoms of Angelman syndrome and ultimately that will provide a cure (see website).